MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version. For a full list of available versions, see the Directory of published versions

Example ResearchStudy: Beispiel Register als ResearchStudy — ERN EURO-NMD

English

identifier: https://ern-euro-nmd.eu/fhir/sid/registry/EURO-NMD-REG

title: ERN EURO-NMD Patient Registry

status: Active

description:

Registry of the European Reference Network for Rare Neuromuscular Diseases.