MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version. For a full list of available versions, see the Directory of published versions

: Beispiel Register als ResearchStudy — ERN EURO-NMD

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{
  "resourceType" : "ResearchStudy",
  "id" : "mii-exa-seltene-register-euro-nmd",
  "language" : "de",
  "text" : {
    "status" : "generated",
    "div" : "<div xml:lang=\"de\" lang=\"de\"><hr/><p><b>German</b></p><hr/><p class=\"res-header-id\"><b>Generated Narrative: ResearchStudy mii-exa-seltene-register-euro-nmd</b></p><a name=\"de-mii-exa-seltene-register-euro-nmd\"> </a><a name=\"de-hcmii-exa-seltene-register-euro-nmd\"> </a><p><b>identifier</b>: <code>https://ern-euro-nmd.eu/fhir/sid/registry</code>/EURO-NMD-REG</p><p><b>title</b>: ERN EURO-NMD Patient Registry</p><p><b>status</b>: Active</p><p><b>description</b>: </p><div><p>Registry of the European Reference Network for Rare Neuromuscular Diseases.</p>\n</div></div>"
  },
  "identifier" : [
    {
      "system" : "https://ern-euro-nmd.eu/fhir/sid/registry",
      "value" : "EURO-NMD-REG"
    }
  ],
  "title" : "ERN EURO-NMD Patient Registry",
  "status" : "active",
  "description" : "Registry of the European Reference Network for Rare Neuromuscular Diseases."
}