MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version. For a full list of available versions, see the Directory of published versions

: Beispiel Register als ResearchStudy — ERN EURO-NMD

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<ResearchStudy xmlns="http://hl7.org/fhir">
  <id value="mii-exa-seltene-register-euro-nmd"/>
  <language value="de"/>
  <text>
    <status value="generated"/>
    <div xml:lang="de" lang="de"><hr/><p><b>German</b></p><hr/><p class="res-header-id"><b>Generated Narrative: ResearchStudy mii-exa-seltene-register-euro-nmd</b></p><a name="de-mii-exa-seltene-register-euro-nmd"> </a><a name="de-hcmii-exa-seltene-register-euro-nmd"> </a><p><b>identifier</b>: <code>https://ern-euro-nmd.eu/fhir/sid/registry</code>/EURO-NMD-REG</p><p><b>title</b>: ERN EURO-NMD Patient Registry</p><p><b>status</b>: Active</p><p><b>description</b>: </p><div><p>Registry of the European Reference Network for Rare Neuromuscular Diseases.</p>
</div></div>
  </text>
  <identifier>
    <system value="https://ern-euro-nmd.eu/fhir/sid/registry"/>
    <value value="EURO-NMD-REG"/>
  </identifier>
  <title value="ERN EURO-NMD Patient Registry"/>
  <status value="active"/>
  <description
               value="Registry of the European Reference Network for Rare Neuromuscular Diseases."/>
</ResearchStudy>