MII IG PRO
2027.0.0-ballot.1 - Germany

This page is part of the MII Implementation Guide PRO (v2027.0.0-ballot.1: 2027 Ballot 5) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

EQ-5D-5L Scores

The EQ-5D-5L generates three different score types that capture different aspects of health-related quality of life. These scores are specified through ObservationDefinitions and can be extracted from QuestionnaireResponse data.

Score Types

1. EQ-5D-5L Index Score

The Index Score is a single value representing the health state on a scale from -0.661 to 1, where 1 represents perfect health.

ObservationDefinition: mii-obsdef-pro-score-eq5d5l-index

Element Value
Title MII ObsDef PRO Score EQ-5D-5L Index
SNOMED CT Code 736534008 - EuroQol five dimension five level index value (observable entity)
MII Code euroqol-eq5d5l-index
Data Type Quantity
Unit 1 (UCUM)
Value Range -0.661 to 1.000
Decimal Places 3
Interpretation Higher values indicate better health status

2. EQ-5D-5L VAS Score

The Visual Analog Scale (VAS) captures self-rated health on a scale from 0 (worst imaginable health state) to 100 (best imaginable health state).

ObservationDefinition: mii-obsdef-pro-score-eq5d5l-vas

Element Value
Title MII ObsDef PRO Score EQ-5D-5L VAS
SNOMED CT Code 736535009 - EuroQol visual analogue score (observable entity)
MII Code euroqol-eq5d5l-vas
Data Type Quantity
Unit 1 (UCUM)
Value Range 0 to 100
Decimal Places 0
Interpretation Higher values indicate better health status

3. EQ-5D-5L Profile

The Profile is a five-digit numeric combination (e.g., 21234) that represents the health state across all five dimensions. Each digit represents the response level (1-5) for one dimension.

ObservationDefinition: mii-obsdef-pro-score-eq5d5l-profile

Element Value
Title MII ObsDef PRO Score EQ-5D-5L Profile
MII Code euroqol-eq5d5l-profile
Data Type String
Format 5-digit number (e.g., "21234")
Interpretation Each digit (1-5) represents severity in one dimension

Calculation Methodology

All three scores are based on the method:

  • SNOMED CT: 73041000052103 - EuroQoL five dimension five level questionnaire (assessment scale)

Calculation is performed either:

  1. Client-side: Directly in the Questionnaire through SDC calculated expressions
  2. Server-side: Through extraction and transformation of QuestionnaireResponse data

References

The score definitions are based on the publication:

Observation Profiles

EQ-5D-5L Index Score

See the profile definition for the full element tree.

EQ-5D-5L VAS Score

See the profile definition for the full element tree.

EQ-5D-5L Profile

See the profile definition for the full element tree.

ObservationDefinition Instances

The ObservationDefinition resources specify the measurement methodology and reference ranges for the EQ-5D-5L scores. These instances are based on the MII_PR_PRO_Score_Blueprint profile.

Implemented ObservationDefinitions:

  • EQ-5D-5L Index: mii-obsdef-pro-score-eq5d5l-index
    • SNOMED: 736534008 "EuroQol five dimension five level index value"
    • Value range: -0.661 to 1.000
  • EQ-5D-5L VAS: mii-obsdef-pro-score-eq5d5l-vas
    • SNOMED: 736535009 "EuroQol visual analogue score"
    • Value range: 0 to 100
  • EQ-5D-5L Profile: mii-obsdef-pro-score-eq5d5l-profile
    • Format: 5-digit number (e.g., "21234")

These ObservationDefinitions are referenced by the Observation profiles via the instantiates element.

Technical Limitation: ObservationDefinition instances in FHIR R4 do not have canonical URLs, which means they cannot be directly rendered by some IG publishing tools.