MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

: Beispiel Register-Katalogeintrag (Library)

Active as of 2026-09-14

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{
  "resourceType" : "Library",
  "id" : "mii-exa-seltene-register-katalog-euro-nmd",
  "language" : "en",
  "text" : {
    "status" : "extensions",
    "div" : "<div xml:lang=\"en\" lang=\"en\"><hr/><p><b>English</b></p><hr/><p><b style=\"color: maroon\">Exception parsing generated Narrative (see /tmp/liquid-71fd7730-71e0-4bb9-8624-290984003955.html): unexpected non-end of element null::a  at line 135 column 50</b></p></div>"
  },
  "url" : "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/Library/mii-exa-seltene-register-katalog-euro-nmd",
  "identifier" : [
    {
      "system" : "https://ern-euro-nmd.eu/fhir/sid/registry",
      "value" : "EURO-NMD-REG"
    }
  ],
  "version" : "2027.0.0-ballot",
  "name" : "ERNEuroNMDRegistry",
  "title" : "ERN EURO-NMD Patient Registry — Katalogeintrag",
  "status" : "active",
  "type" : {
    "coding" : [
      {
        "system" : "http://terminology.hl7.org/CodeSystem/library-type",
        "code" : "asset-collection"
      }
    ]
  },
  "date" : "2026-09-14T21:59:44+00:00",
  "publisher" : "Medizininformatik Initiative",
  "contact" : [
    {
      "name" : "Medizininformatik Initiative",
      "telecom" : [
        {
          "system" : "url",
          "value" : "https://www.medizininformatik-initiative.de/"
        }
      ]
    }
  ],
  "jurisdiction" : [
    {
      "coding" : [
        {
          "system" : "urn:iso:std:iso:3166",
          "code" : "DE",
          "display" : "Germany"
        }
      ]
    }
  ],
  "relatedArtifact" : [
    {
      "type" : "documentation",
      "url" : "https://ern-euro-nmd.eu/registry/",
      "document" : {
        "url" : "https://ern-euro-nmd.eu/registry/"
      }
    }
  ]
}