MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

: Beispiel Registerteilnahme — ERN EURO-NMD

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{
  "resourceType" : "ResearchSubject",
  "id" : "mii-exa-seltene-registerteilnahme",
  "meta" : {
    "profile" : [
      🔗 "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-pr-seltene-registerteilnahme|2027.0.0-ballot"
    ]
  },
  "language" : "en",
  "text" : {
    "status" : "extensions",
    "div" : "<div xml:lang=\"en\" lang=\"en\"><hr/><p><b>English</b></p><hr/><p class=\"res-header-id\"><b>Generated Narrative: ResearchSubject mii-exa-seltene-registerteilnahme</b></p><a name=\"mii-exa-seltene-registerteilnahme\"> </a><a name=\"hcmii-exa-seltene-registerteilnahme\"> </a><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\"/><p style=\"margin-bottom: 0px\">Profile: <a href=\"StructureDefinition-mii-pr-seltene-registerteilnahme.html\">MII PR SE Registerteilnahme</a> version: 2027.0.0-ballot</p></div><p><b>MII EX SE Register</b>: <a href=\"Library-mii-exa-seltene-register-katalog-euro-nmd.html\">ERN EURO-NMD Patient Registry — Katalogeintrag</a></p><p><b>identifier</b>: <code>https://ern-euro-nmd.eu/fhir/sid/subject</code>/NMD-DE-004712</p><p><b>status</b>: On-study</p><p><b>period</b>: 2024-08-15 --&gt; (ongoing)</p><p><b>study</b>: <a href=\"ResearchStudy-mii-exa-seltene-register-euro-nmd.html\">ResearchStudy ERN EURO-NMD Patient Registry</a></p><p><b>individual</b>: <a href=\"Patient-mii-exa-seltene-patient-sma-001.html\">Anonymous Patient Female, DoB: 2024-07-01 ( https://www.medizininformatik-initiative.de/fhir/sid/patient-id#SMA-2024-001)</a></p><p><b>consent</b>: <a href=\"Consent-mii-exa-seltene-register-einwilligung.html\">mii-exa-seltene-register-einwilligung</a></p></div>"
  },
  "extension" : [
    {
      "url" : "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-ex-seltene-register",
      "valueReference" : {
        🔗 "reference" : "Library/mii-exa-seltene-register-katalog-euro-nmd"
      }
    }
  ],
  "identifier" : [
    {
      "system" : "https://ern-euro-nmd.eu/fhir/sid/subject",
      "value" : "NMD-DE-004712"
    }
  ],
  "status" : "on-study",
  "period" : {
    "start" : "2024-08-15"
  },
  "study" : {
    🔗 "reference" : "ResearchStudy/mii-exa-seltene-register-euro-nmd"
  },
  "individual" : {
    🔗 "reference" : "Patient/mii-exa-seltene-patient-sma-001"
  },
  "consent" : {
    🔗 "reference" : "Consent/mii-exa-seltene-register-einwilligung"
  }
}