MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

: Beispiel Register-Katalogeintrag (Library)

Active Stand: 2026-09-14

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<Library xmlns="http://hl7.org/fhir">
  <id value="mii-exa-seltene-register-katalog-euro-nmd"/>
  <language value="de"/>
  <text>
    <status value="extensions"/>
    <div xml:lang="de" lang="de"><hr/><p><b>German</b></p><hr/><p><b style="color: maroon">Exception parsing generated Narrative (see /tmp/liquid-6c7c01f2-1983-425e-b4ae-7a674376cde1.html): unexpected non-end of element null::a  at line 135 column 50</b></p></div>
  </text>
  <url
       value="https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/Library/mii-exa-seltene-register-katalog-euro-nmd"/>
  <identifier>
    <system value="https://ern-euro-nmd.eu/fhir/sid/registry"/>
    <value value="EURO-NMD-REG"/>
  </identifier>
  <version value="2027.0.0-ballot"/>
  <name value="ERNEuroNMDRegistry"/>
  <title value="ERN EURO-NMD Patient Registry — Katalogeintrag"/>
  <status value="active"/>
  <type>
    <coding>
      <system value="http://terminology.hl7.org/CodeSystem/library-type"/>
      <code value="asset-collection"/>
    </coding>
  </type>
  <date value="2026-09-14T21:59:44+00:00"/>
  <publisher value="Medizininformatik Initiative"/>
  <contact>
    <name value="Medizininformatik Initiative"/>
    <telecom>
      <system value="url"/>
      <value value="https://www.medizininformatik-initiative.de/"/>
    </telecom>
  </contact>
  <jurisdiction>
    <coding>
      <system value="urn:iso:std:iso:3166"/>
      <code value="DE"/>
      <display value="Germany"/>
    </coding>
  </jurisdiction>
  <relatedArtifact>
    <type value="documentation"/>
    <url value="https://ern-euro-nmd.eu/registry/"/>
    <document>
      <url value="https://ern-euro-nmd.eu/registry/"/>
    </document>
  </relatedArtifact>
</Library>