MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

Beispiel ResearchSubject: Beispiel Registerteilnahme — ERN EURO-NMD

German

Profile: MII PR SE Registerteilnahme version: 2027.0.0-ballot

MII EX SE Register: ERN EURO-NMD Patient Registry — Katalogeintrag

identifier: https://ern-euro-nmd.eu/fhir/sid/subject/NMD-DE-004712

status: On-study

period: 2024-08-15 --> (ongoing)

study: ResearchStudy ERN EURO-NMD Patient Registry

individual: Anonymous Patient Female, DoB: 2024-07-01 ( https://www.medizininformatik-initiative.de/fhir/sid/patient-id#SMA-2024-001)

consent: mii-exa-seltene-register-einwilligung