MII EX SE Empfehlung Publikation - MII IG Kerndatensatz-Modul Seltene Erkrankungen v2027.0.0-ballot

MII IG Kerndatensatz-Modul Seltene Erkrankungen
2027.0.0-ballot - Germany

This page is part of the MII Implementation Guide Seltene Erkrankungen (v2027.0.0-ballot: 2027 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

Extension: MII EX SE Empfehlung Publikation - Detaillierte Beschreibungen

Active Stand: 2026-09-14

Definitionen für das mii-ex-seltene-empfehlung-publikation extension

Schlüsselelemente-Tabelle
Differential-Tabelle
Snapshot-Tabelle

Guidance on how to interpret the contents of this table can be foundhere

0. Extension
Definition	Verweis auf Publikation der (einzelnen) Empfehlung Optional Extension Element - found in all resources.
Short	MII EX SE Empfehlung PublikationOptional Extensions Element
Control	0..* This element is affected by the following invariants: ele-1
Is Modifier	false
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count())) ext-1: Must have either extensions or value[x], not both (`extension.exists() != value.exists()`) ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
2. Extension.extension
Definition	An Extension May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.
Short	ExtensionAdditional content defined by implementations
Comments	There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
Control	0..0*
Type	Extension
Is Modifier	false
Summary	false
Alternate Names	extensions, user content
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count())) ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
Slicing	This element introduces a set of slices on `Extension.extension`. The slices areUnordered and Open, and can be differentiated using the following discriminators: value @ url
4. Extension.url
Definition	Source of the definition for the extension code - a logical name or a URL.
Short	identifies the meaning of the extension
Comments	The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.
Control	1..1
Type	uri
Is Modifier	false
XML Format	In the XML format, this property is represented as an attribute.
Summary	false
Fixed Value	`https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-ex-seltene-empfehlung-publikation`
6. Extension.value[x]
Definition	Value of extension - must be one of a constrained set of the data types (see Extensibility for a list).
Short	Value of extension
Control	10..1
Type	Choice of: string, Identifier, date, Meta, Address, Attachment, integer, Count, DataRequirement, Dosage, uuid, Coding, SampledData, id, positiveInt, Distance, Period, Duration, canonical, Range, RelatedArtifact, base64Binary, UsageContext, Timing, decimal, CodeableConcept, ParameterDefinition, dateTime, code, Contributor, oid, instant, ContactPoint, HumanName, Money, markdown, Ratio, Age, Reference, TriggerDefinition, Quantity, uri, url, Annotation, ContactDetail, boolean, Expression, Signature, unsignedInt, time
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Must Support Types	No must-support rules about the choice of types/profiles
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
Slicing	This element introduces a set of slices on `Extension.value[x]`. The slices areUnordered and Closed, and can be differentiated using the following discriminators: type @ $this
8. Extension.value[x]:valueIdentifier
Slice Name	valueIdentifier
Definition	Eindeutiger Identifikator zur Publikation in einer Publikationsdatenbank Value of extension - must be one of a constrained set of the data types (see Extensibility for a list).
Short	Identifikator PublikationValue of extension
Comments	Z.B. Document Object Identifier (DOI): https://doi.org/10.3414/ME18-03-0003 oder PubMed Identifier (PMID): http://www.ncbi.nlm.nih.gov/pubmed/30016818
Control	0..1
Type	Identifier, date, Meta, Address, Attachment, integer, Count, DataRequirement, Dosage, uuid, Coding, SampledData, id, positiveInt, Distance, Period, Duration, canonical, Range, RelatedArtifact, base64Binary, UsageContext, Timing, decimal, CodeableConcept, ParameterDefinition, dateTime, code, string, Contributor, oid, instant, ContactPoint, HumanName, Money, markdown, Ratio, Age, Reference, TriggerDefinition, Quantity, uri, url, Annotation, ContactDetail, boolean, Expression, Signature, unsignedInt, time
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
10. Extension.value[x]:valueIdentifier.use
Definition	The purpose of this identifier.
Short	usual \| official \| temp \| secondary \| old (If known)
Comments	Applications can assume that an identifier is permanent unless it explicitly says that it is temporary.
Control	0..1
Binding	The codes SHALL be taken from IdentifierUsehttp://hl7.org/fhir/ValueSet/identifier-use\|4.0.1 (required to `http://hl7.org/fhir/ValueSet/identifier-use\|4.0.1`) Identifies the purpose for this identifier, if known .
Type	code
Is Modifier	true because This is labeled as "Is Modifier" because applications should not mistake a temporary id for a permanent one.
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Summary	true
Requirements	Allows the appropriate identifier for a particular context of use to be selected from among a set of identifiers.
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
12. Extension.value[x]:valueIdentifier.system
Definition	Establishes the namespace for the value - that is, a URL that describes a set values that are unique.
Short	The namespace for the identifier value
Comments	Publikationsdatenbank, z.B. DOI: http://doi.org oder PMID: http://www.ncbi.nlm.nih.gov/pubmed Identifier.system is always case sensitive.
Control	10..1
Type	uri
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Summary	true
Requirements	There are many sets of identifiers. To perform matching of two identifiers, we need to know what set we're dealing with. The system identifies a particular set of unique identifiers.
Example	General: http://www.acme.com/identifiers/patient
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
14. Extension.value[x]:valueIdentifier.value
Definition	The portion of the identifier typically relevant to the user and which is unique within the context of the system.
Short	The value that is unique
Comments	Identifikator zur Publikation, z.B. DOI: 10.1000/182 oder PMID: 30016818 If the value is a full URI, then the system SHALL be urn:ietf:rfc:3986. The value's primary purpose is computational mapping. As a result, it may be normalized for comparison purposes (e.g. removing non-significant whitespace, dashes, etc.) A value formatted for human display can be conveyed using the Rendered Value extension. Identifier.value is to be treated as case sensitive unless knowledge of the Identifier.system allows the processer to be confident that non-case-sensitive processing is safe.
Control	10..1
Type	string
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Summary	true
Example	General: 123456
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
16. Extension.value[x]:valueString
Slice Name	valueString
Definition	Publikationsquelle die nicht über eine Publikationsdatenbank referenzierbar ist Value of extension - must be one of a constrained set of the data types (see Extensibility for a list).
Short	Andere PublikationsquelleValue of extension
Comments	Z.B. Whitepaper oder Leitlinie
Control	0..1
Type	string, date, Meta, Address, Attachment, integer, Count, DataRequirement, Dosage, uuid, Identifier, Coding, SampledData, id, positiveInt, Distance, Period, Duration, canonical, Range, RelatedArtifact, base64Binary, UsageContext, Timing, decimal, CodeableConcept, ParameterDefinition, dateTime, code, Contributor, oid, instant, ContactPoint, HumanName, Money, markdown, Ratio, Age, Reference, TriggerDefinition, Quantity, uri, url, Annotation, ContactDetail, boolean, Expression, Signature, unsignedInt, time
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))

Guidance on how to interpret the contents of this table can be foundhere

0. Extension
Definition	Verweis auf Publikation der (einzelnen) Empfehlung
Short	MII EX SE Empfehlung Publikation
2. Extension.extension
Control	0..0
4. Extension.url
Fixed Value	`https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-ex-seltene-empfehlung-publikation`
6. Extension.value[x]
Control	1..?
Type	Choice of: string, Identifier, date, Meta, Address, Attachment, integer, Count, DataRequirement, Dosage, uuid, Coding, SampledData, id, positiveInt, Distance, Period, Duration, canonical, Range, RelatedArtifact, base64Binary, UsageContext, Timing, decimal, CodeableConcept, ParameterDefinition, dateTime, code, Contributor, oid, instant, ContactPoint, HumanName, Money, markdown, Ratio, Age, Reference, TriggerDefinition, Quantity, uri, url, Annotation, ContactDetail, boolean, Expression, Signature, unsignedInt, time
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Must Support Types	No must-support rules about the choice of types/profiles
Slicing	This element introduces a set of slices on `Extension.value[x]`. The slices areUnordered and Open, and can be differentiated using the following discriminators: type @ $this
8. Extension.value[x]:valueIdentifier
Slice Name	valueIdentifier
Definition	Eindeutiger Identifikator zur Publikation in einer Publikationsdatenbank
Short	Identifikator Publikation
Comments	Z.B. Document Object Identifier (DOI): https://doi.org/10.3414/ME18-03-0003 oder PubMed Identifier (PMID): http://www.ncbi.nlm.nih.gov/pubmed/30016818
Control	0..1
Type	Identifier
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
10. Extension.value[x]:valueIdentifier.system
Comments	Publikationsdatenbank, z.B. DOI: http://doi.org oder PMID: http://www.ncbi.nlm.nih.gov/pubmed
Control	1..?
Must Support	true
12. Extension.value[x]:valueIdentifier.value
Comments	Identifikator zur Publikation, z.B. DOI: 10.1000/182 oder PMID: 30016818
Control	1..?
Must Support	true
14. Extension.value[x]:valueString
Slice Name	valueString
Definition	Publikationsquelle die nicht über eine Publikationsdatenbank referenzierbar ist
Short	Andere Publikationsquelle
Comments	Z.B. Whitepaper oder Leitlinie
Control	0..1
Type	string
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Primitive Value	This primitive element may be present, or absent, or replaced by an extension

Guidance on how to interpret the contents of this table can be foundhere

0. Extension
Definition	Verweis auf Publikation der (einzelnen) Empfehlung
Short	MII EX SE Empfehlung Publikation
Control	0..* This element is affected by the following invariants: ele-1
Is Modifier	false
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`) ext-1: Must have either extensions or value[x], not both (`extension.exists() != value.exists()`)
2. Extension.id
Definition	Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
Short	Unique id for inter-element referencing
Control	0..1
Type	string
Is Modifier	false
XML Format	In the XML format, this property is represented as an attribute.
Summary	false
4. Extension.extension
Definition	An Extension
Short	Extension
Control	0..0
Type	Extension
Is Modifier	false
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`) ext-1: Must have either extensions or value[x], not both (`extension.exists() != value.exists()`)
Slicing	This element introduces a set of slices on `Extension.extension`. The slices areUnordered and Open, and can be differentiated using the following discriminators: value @ url
6. Extension.url
Definition	Source of the definition for the extension code - a logical name or a URL.
Short	identifies the meaning of the extension
Comments	The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.
Control	1..1
Type	uri
Is Modifier	false
XML Format	In the XML format, this property is represented as an attribute.
Summary	false
Fixed Value	`https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-ex-seltene-empfehlung-publikation`
8. Extension.value[x]
Definition	Value of extension - must be one of a constrained set of the data types (see Extensibility for a list).
Short	Value of extension
Control	1..1
Type	Choice of: string, Identifier
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Must Support Types	No must-support rules about the choice of types/profiles
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
Slicing	This element introduces a set of slices on `Extension.value[x]`. The slices areUnordered and Closed, and can be differentiated using the following discriminators: type @ $this
10. Extension.value[x]:valueIdentifier
Slice Name	valueIdentifier
Definition	Eindeutiger Identifikator zur Publikation in einer Publikationsdatenbank
Short	Identifikator Publikation
Comments	Z.B. Document Object Identifier (DOI): https://doi.org/10.3414/ME18-03-0003 oder PubMed Identifier (PMID): http://www.ncbi.nlm.nih.gov/pubmed/30016818
Control	0..1
Type	Identifier
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
12. Extension.value[x]:valueIdentifier.id
Definition	Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
Short	Unique id for inter-element referencing
Control	0..1
Type	string
Is Modifier	false
XML Format	In the XML format, this property is represented as an attribute.
Summary	false
14. Extension.value[x]:valueIdentifier.extension
Definition	May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.
Short	Additional content defined by implementations
Comments	There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
Control	0..*
Type	Extension
Is Modifier	false
Summary	false
Alternate Names	extensions, user content
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`) ext-1: Must have either extensions or value[x], not both (`extension.exists() != value.exists()`)
Slicing	This element introduces a set of slices on `Extension.value[x].extension`. The slices areUnordered and Open, and can be differentiated using the following discriminators: value @ url
16. Extension.value[x]:valueIdentifier.use
Definition	The purpose of this identifier.
Short	usual \| official \| temp \| secondary \| old (If known)
Comments	Applications can assume that an identifier is permanent unless it explicitly says that it is temporary.
Control	0..1
Binding	The codes SHALL be taken from IdentifierUse (required to `http://hl7.org/fhir/ValueSet/identifier-use\|4.0.1`) Identifies the purpose for this identifier, if known .
Type	code
Is Modifier	true because This is labeled as "Is Modifier" because applications should not mistake a temporary id for a permanent one.
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Summary	true
Requirements	Allows the appropriate identifier for a particular context of use to be selected from among a set of identifiers.
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
18. Extension.value[x]:valueIdentifier.type
Definition	A coded type for the identifier that can be used to determine which identifier to use for a specific purpose.
Short	Description of identifier
Comments	This element deals only with general categories of identifiers. It SHOULD not be used for codes that correspond 1..1 with the Identifier.system. Some identifiers may fall into multiple categories due to common usage. Where the system is known, a type is unnecessary because the type is always part of the system definition. However systems often need to handle identifiers where the system is not known. There is not a 1:1 relationship between type and system, since many different systems have the same type.
Control	0..1
Binding	Unless not suitable, these codes SHALL be taken from Identifier Type Codes (extensible to `http://hl7.org/fhir/ValueSet/identifier-type\|4.0.1`) A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.
Type	CodeableConcept
Is Modifier	false
Summary	true
Requirements	Allows users to make use of identifiers when the identifier system is not known.
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
20. Extension.value[x]:valueIdentifier.system
Definition	Establishes the namespace for the value - that is, a URL that describes a set values that are unique.
Short	The namespace for the identifier value
Comments	Publikationsdatenbank, z.B. DOI: http://doi.org oder PMID: http://www.ncbi.nlm.nih.gov/pubmed
Control	1..1
Type	uri
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Summary	true
Requirements	There are many sets of identifiers. To perform matching of two identifiers, we need to know what set we're dealing with. The system identifies a particular set of unique identifiers.
Example	General: http://www.acme.com/identifiers/patient
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
22. Extension.value[x]:valueIdentifier.value
Definition	The portion of the identifier typically relevant to the user and which is unique within the context of the system.
Short	The value that is unique
Comments	Identifikator zur Publikation, z.B. DOI: 10.1000/182 oder PMID: 30016818
Control	1..1
Type	string
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Must Support	true
Summary	true
Example	General: 123456
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
24. Extension.value[x]:valueIdentifier.period
Definition	Time period during which identifier is/was valid for use.
Short	Time period when id is/was valid for use
Control	0..1
Type	Period
Is Modifier	false
Summary	true
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
26. Extension.value[x]:valueIdentifier.assigner
Definition	Organization that issued/manages the identifier.
Short	Organization that issued id (may be just text)
Comments	The Identifier.assigner may omit the .reference element and only contain a .display element reflecting the name or other textual information about the assigning organization.
Control	0..1
Type	Reference(Organization)
Is Modifier	false
Summary	true
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)
28. Extension.value[x]:valueString
Slice Name	valueString
Definition	Publikationsquelle die nicht über eine Publikationsdatenbank referenzierbar ist
Short	Andere Publikationsquelle
Comments	Z.B. Whitepaper oder Leitlinie
Control	0..1
Type	string
[x] Note	SeeChoice of Data Typesfor further information about how to use [x]
Is Modifier	false
Primitive Value	This primitive element may be present, or absent, or replaced by an extension
Summary	false
Invariants	ele-1: All FHIR elements must have a @value or children (`hasValue() or (children().count() > id.count())`)

IG © 2022+ Medizininformatik Initiative. Package de.medizininformatikinitiative.kerndatensatz.seltene#2027.0.0-ballot basiert auf FHIR 4.0.1. Erstellt 2026-09-14
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